I’m twelve weeks and four days, deep breath now, yes? Well, “BWAHAHA!!!” says the universe. Not so fast Melissa, here’s a little curve ball just in case you were getting a little too comfortable shopping for maternity clothes and thinking about colors for the potential nursery. Oh and don’t pick out any names just yet either!
I got a phone call today. My Natural Killer Cells are elevated again. Not to an exceedingly dangerous level mind you, but elevated nonetheless. And yes, aside from them being normal last time I had a blood draw, I was very aware that this could be an issue. But my friend Denial and I had made up our minds that this problem would just go away, and we were quite content with that. Let me just say, that I’ve planned to do, and will do everything within my power to keep this baby safe, but sweet Jesus am I so overwhelmed with the constant stream of having things to fear in regards to this pregnancy. Please know that I’m so grateful to have gotten this far, and for the fact that I have access to such specialized care. But oh my gawd I am just exhausted from all of this – all the ups and downs, and feeling pushed and pulled by being so aware that having gone through four years of infertility has changed me, mostly for the good. And I’ll never be the same, I’m not a regular pregnant person - and for so many reasons, I am proud of that. But now, in this regard, I want so badly to be a regular pregnant person. I’ve read so many blog posts about the women who hate graduating from the their clinics (save the fact that it usually means they are pregnant) because they are sad to leave the safety net of their RE’s monitoring and guidance. Which makes plenty of sense. But for me, I am just so fucking over the constant monitoring. I can’t wait to wrap things up over there. Don’t get me wrong. I love Dr.3 and the fact that he made our biggest dream come true (so far). But DAMMAT am I ready to be done with them. I don’t want to see another alcohol pad, or syringe of any type, or a fucking cotton ball covered by paper tape on my arm... I’m tired of weekly blood draws and hoping I get my favorite phlebotomist – I DON’T WANT TO HAVE A FAVORITE FUCKING PHLEMBOTOMIST! It’s been six months now of regular monitoring and I’m starting to feel more like an inmate that a fucking patient.
But back to the NK issue. All I have to do is have another Intralipid infusion. Piece of cake, right? Sure, except that my clinic and the satellite office for the Beers Center totally screw you on the cost. My clinic charges $700.00 per infusion, it takes about 90 minutes and they are 7 miles away from my office. The Beers Office charges $550.00, takes about 3.5 hours (including travel time) and is 30 miles away from my office. The kicker? A bag of the Intralipid mixture, cost roughly $50.00 US dollars. Which basically means I'm taking it in the tuckus to pay for their overhead, because they basically have me and everyone else, over a barrel. They might as well say “Take this, or your baby will die. Cash, Check or Charge? ”
I just want to scream ENOUGH ALREADY!!!
After I caught my breath a bit I sent an email to Dr. 3 with a few questions.
Hello Dr.3,
I was wondering if you would be able to explain a little bit about what the recent increase in my NK cells could mean. I understand that the level is fairly low, does that still mean the Intralipid infusion absolutely necessary? Also, how likely is this to be an ongoing issue during the rest of my pregnancy?
Thank you in advance for your time
Sincerely, ProbablynotgoingtobeabletorelaxuntilI’mwritingacheckforthiskidswedding
His response:
Hi Melissa,
90% of the patients who require immunology treatment are done by twelve weeks. You fall into the 10% where your NK is still a little elevated and the reason to treat is because of the possibility that the Natural Killer Cells could attack the developing placenta.
As the placenta gets bigger it is better able to defend itself and that is why most people are usually done by twelve weeks. In patients with severe elevations, it is sometimes necessary to treat them up to 20 weeks, but not beyond. I think it is very likely that your levels will be normal after one more treatment, but the body is not a machine, so one cannot say with certainty until we test again.
Warm regards,
Dr. 3
And my progesterone levels are still stupid – in my opinion. This week came in at 15. I have another 11 days of the suppositories that melt and drip out shortly after I go to bed, mostly because I’m up peeing every two hours. So I have to wonder if I am even getting the benefit of them. Sorry for the rant. And sorry if this sounded like my complaining is unreasonable. Deep down I am grateful to have problems like these, because I am all too aware of the alternative. Thanks for listening.
Reading.
Whatever.
13 comments:
Nice. What I did was order the IL at a pharmacy (with a script from the dr), take it to hospital, got myself admitted into the day unit and got the nurses to administer it (another letter required from dr). My medical insurance even paid because it was a hospital visit. I did it 3 times.
You have GOT to be kidding! You can't catch a break. I can't believe how expensive that treatment is. I really hope and pray this is the only time you'll need it and that you will have a relaxing second trimester. Lord knows you deserve it. ((HUGS))
hoping that this treatment does the trick, hang in there...
Oh my gosh Melissa, you have been put through the wringer both physically and emotionally. Was it not enough to have such a rough path to getting pregnant?? Now you have to endure this, too? I feel so badly that you're experiencing all of this. Don't feel guilty for your frustration and fear -- you have every right to feel this way. You fought tooth and nail for your pregnancy and of course you would be terrified and stressed. I REALLY hope and pray that this will be the last round of IViGs and that the rest of your pregnancy will be smooth sailing. Hang in there, I am thinking of you.
Why can't you have an easy pregnancy!!! After 4 years of waiting and all the bullshit that went along with it, you should get a free pass!!! Hang in there, it will all be worth it!
totally rant-worthy.
may your graduation to "normal" be just around the corner.
Oh, sweetie, I totally get it. Having a favorite plebotomist is NOT a good thing.
Hang in there. This will be over soon and you'll be a "regular" patient shortly.
Oh this sucks, I'm sorry. I really hope you soon get to have a "normal" pregnancy! Although at this point, I'm not sure if any of us ever have this... :) Hang in there!
I'm sorry....this sucks! I hear ya about the monitoring and wanting to be done and in the safe-area.
I hope that things balance out without too much stress on your part and you can ENJOY this pregnancy!
Oh that just sucks. I do hope this round of treatment is the last one you have to do and everything normals out for you so you can have a nice, boring, HAPPY pregnancy.
Good luck.
I'm crossing my fingers that all this on this end of your pregnancy just ensures a perfectly "boring" and "normal" end of your pregnancy. Hang in there.
Nothing for assvice, but just wanted you to know that I have my finger up to the universe in your honor. Hang in there...
I want this to be easy for you. I'm sorry it's so worrying. Always thinking of you. I hope those NK Cells get zapped gone good! Let's pick a date to get together soon. XOXO
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