Taking It All In and Blocking It Out

My title makes me think of Kevin Nealon in Happy Gilmore: "Harness Good, Block Bad"... Anyway.

Thank you all for your comments/thoughts and prayers and texts, in some cases. They really meant a lot. 

I was pretty down when I wrote that post, and was feeling helpless and terrified. I tend to wallow in things, to breathe them in for processing. But I didn't want to do that this time. Still I jumped on Doctor Google, and for once he put my mind at ease. If there are cancer cells, it will indeed be very early stage and it can be sucessfully treated. Which made me feel a bit better. 

So I have mostly just been trying to keep my mind off of it. My biopsy is Tuesday, and Brian will be going with me. They will give me a local to numb the area, and from start to finish it should be about 90 minutes. I'll need to take it easy for 24 hours, meaning no lifting Leah. I should expect tenderness for a few days and bruising for a few weeks. They will send the Biopsy to Pathology, and I should have the results within 72 hours. Which means, I should have them before next weekend. Nice to know I won't have to wait too long. 

I think the questions that keep running through my head are: 

Is this linked to the hormones I took during IVF?

Does this mean I should avoid another pregnancy? (we still have the one frozen embie we were planning to transfer in the next year or two)

Does the concentration of calcification put me at higher risk to develop Breast Cancer?

If they are pre-cancerous or even cancer cells, does getting them at such a young age (34) mean I am at a higher risk to develop more in the future?

To Be Continued...

Lie To Me

At what point does leaving the house become NOT such a monumental undertaking? So far, I've only gotten grocery shopping down...And even that requires mental preparation. 

So I'm either over thinking it, completely incompetent (entirely possible) or it is actually really fucking hard when kids are this age. 

It seems like I end up exhausted or regretful with just about everything else I attempt. Please tell me I'm not alone and how soon it will get easier. 

If you don't have good news - just lie to me. 

12 Weeks, But Don't Get Too Comfy

I’m twelve weeks and four days, deep breath now, yes? Well, “BWAHAHA!!!” says the universe. Not so fast Melissa, here’s a little curve ball just in case you were getting a little too comfortable shopping for maternity clothes and thinking about colors for the potential nursery. Oh and don’t pick out any names just yet either!


I got a phone call today. My Natural Killer Cells are elevated again. Not to an exceedingly dangerous level mind you, but elevated nonetheless. And yes, aside from them being normal last time I had a blood draw, I was very aware that this could be an issue. But my friend Denial and I had made up our minds that this problem would just go away, and we were quite content with that. Let me just say, that I’ve planned to do, and will do everything within my power to keep this baby safe, but sweet Jesus am I so overwhelmed with the constant stream of having things to fear in regards to this pregnancy. Please know that I’m so grateful to have gotten this far, and for the fact that I have access to such specialized care. But oh my gawd I am just exhausted from all of this –  all the ups and downs, and feeling pushed and pulled by being so aware that having gone through four years of infertility has changed me, mostly for the good. And I’ll never be the same, I’m not a regular pregnant person - and for so many reasons,  I am proud of that. But now, in this regard, I want so badly to be a regular pregnant person.  I’ve read so many blog posts about the women who hate graduating from the their clinics (save the fact that it usually means they are pregnant)  because they are sad to leave the safety net of their RE’s monitoring and guidance. Which makes plenty of sense. But for me, I am just so fucking over the constant monitoring. I can’t wait to wrap things up over there. Don’t get me wrong. I love Dr.3 and the fact that he made our biggest dream come true (so far). But DAMMAT am I ready to be done with them. I don’t want to see another alcohol pad, or syringe of any type, or a fucking cotton ball covered by paper tape on my arm... I’m tired of weekly blood draws and hoping I get my favorite phlebotomist – I DON’T WANT TO HAVE  A FAVORITE FUCKING PHLEMBOTOMIST! It’s been six months now of regular monitoring and I’m starting to feel more like an inmate that a fucking patient. 


But back to the NK issue. All I have to do is have another Intralipid infusion. Piece of cake, right? Sure, except that my clinic and the satellite office for the Beers Center totally screw you on the cost. My clinic charges $700.00 per infusion, it takes about 90 minutes and they are 7 miles away from my office. The Beers Office charges $550.00, takes about 3.5 hours (including travel time) and is 30 miles away from my office. The kicker? A bag of the Intralipid mixture, cost roughly $50.00 US dollars. Which basically means I'm taking it in the tuckus to pay for their overhead, because they basically have me and everyone else, over a barrel. They might as well say “Take this, or your baby will die. Cash, Check or Charge? ” 


I just want to scream ENOUGH ALREADY!!! 


After I caught my breath a bit I sent an email to Dr. 3 with a few questions. 


Hello Dr.3, 


I was wondering if you would be able to explain a little bit about what the recent increase in my NK cells could mean. I understand that the level is fairly low, does that still mean the Intralipid infusion absolutely necessary? Also, how likely is this to be an ongoing issue during the rest of my pregnancy? 
Thank you in advance for your time 


Sincerely, ProbablynotgoingtobeabletorelaxuntilI’mwritingacheckforthiskidswedding


His response:


Hi Melissa, 


90% of the patients who require immunology treatment are done by twelve weeks. You fall into the 10% where your NK is still a little elevated and the reason to treat is because of the possibility that the Natural Killer Cells could attack the developing placenta. 


As the placenta gets bigger it is better able to defend itself and that is why most people are usually done by twelve weeks. In patients with severe elevations, it is sometimes necessary to treat them up to 20 weeks, but not beyond. I think it is very likely that your levels will be normal after one more treatment, but the body is not a machine, so one cannot say with certainty until we test again. 


Warm regards, 
Dr. 3 


And my progesterone levels are still stupid – in my opinion. This week came in at 15. I have another 11 days of the suppositories that melt and drip out shortly after I go to bed, mostly because I’m up peeing every two hours. So I have to wonder if I am even getting the benefit of them. Sorry for the rant. And sorry if this sounded like my complaining is unreasonable. Deep down I am grateful to have problems like these, because I am all too aware of the alternative. Thanks for listening. 


Reading. 


Whatever.

Still A No-Go.

The whore-bag cyst is not only still entirely present, but has grown another 1.5 mm. Putting her at a vast 24.5mm total. And my lining is growing like it would in a normal cycle. Fuck.

I am so incredibly disappointed.

Dr.3 wants to wait it out, so I’ll be staying on the ten units of Lupron. Which by the way, makes no fucking sense to me at all. Why would we do anything to prohibit or suppress this thing from maturing/rupturing??? And if the Lupron isn't suprressing me enough, than staying on it is really just slowing the down the inevitable right??? I wish I could say I thought to ask him all this, but I was concentrating on not bursting into tears and looking like a complete douche. 

Yeah, he’s the RE and I’m not, and I do trust him entirely – but dammat I really wanted to be given a plan of attack if it got to this point. It’s been five days since my last u/s and I’ve had follicles get at least as big as 27mm, so at the rate I’m going it could be another ten days before this thing ruptures. And on top of that he wants me to have another period before we move forward. He checked my lining during the u/s and it’s thickening up like it normally would because of the high levels of estrogen and progesterone.  He did explain that we’re not looking at another 30 day wait for my period, it’s more likely to be 6-10 days before I bleed again (if that thing collapses soon). But that is very little consolation considering that today should have been my first monitoring appointment, and my retrieval could have been this weekend.

I can’t even explain the level of disappointment I’m feeling right now.

This fucking blows.

What Has Two Thumbs

And tested positive for two A1298C mutations, indicating MTHFR?

Alright, we all know how that one ends...

So, craaaaaap. I guess with my OPCOS diagnosis and now this I can officially say we are a train wreck Male and Female factor IF. I know this isn't the worst possible senario, but having gone two and a half years and six dIUI's believing that we only had the male factor issue, well, it sort of makes me want to crack some skulls.

MTHFR is not something that my old RE would have ever tested for. Because it falls under immunological disorders. And my old clinic didn't believe in immunological factors... Some RE's do, some don't. And it's not being partial to CSI: Las Vegas over Miami, it's like different religions.

I thought science was a little more... black and white.

How does one not believe in a gene mutation?

I don't understand.

And more than that, I don't quite understand what this means for me.

And my likelihood of a successful pregnancy.

I'm scared.

I probably sound like a complete moron, and believe me, I know enough to know that I can't even begin to comprehend the complexities behind this issue. I just wish that I didn't feel so caught in the middle...

An MTHFR success story might be nice to hear right about now.

I've started reading up on it, but I don't really know what to consider a legitimate source. Any recommendations?

Not Even Close

I've entered the loneliest place in my head yet again. It's the room where everyone has it better than me, and I wonder what we've done in our past lives to deserve all this heartache.

Friday night we went to one of my husbands client's houses for dinner. They have two ADORABLE kids. The oldest, a little girl who took right to me. She made almost constant eye contact with me hoping I was paying attention to whatever she was doing at the moment, and she wore my size 11 flip flops the entire night. Later in the evening, close to her bedtime, she got upset while playing a game and she began to cry. Her mother came over to comfort her, scoping her up into her arms, and whispering softly to ease her pain and turn her tears into laughter again. After a few minutes of rocking and a reluctant smile, mom convinced her to go get her prettiest nightgown on to show me.

"Sorry about that, they just cry really easily when they get tired".

I realize now that by the look I must have had on my face she thought I was upset by the little girl's crying. But I get that, hell I cry when I'm overtired - it was witnessing such a tender moment that killed me. Watching her rock, and whisper her daughters tears away is something I ache for to the very depths of my soul. And on the way home it crushed me even more to realize I'm not even close to being able to do that. I cried myself to sleep that night, and I haven't been able to shake it since. It really feels like it's never going to happen for us.

I know this break is important for healing, but how long is it really going to be? Is it just till we have enough money to actually do something? But what's 'enough' anyway? We've been talking recently about moving on to adoption, and while I'm very open to that, it feels like the more we deliberate over our options the father away we are from taking a real step. I feel lost again.

Crossroads

I totally meant update sooner, but I spent the entire weekend in bed with a NASTY cold. What started as a slightly stuffy nose on Friday (I have allergies, so a stuffy nose is fairly common for me), turned into a full blown head cold by Saturday. It fucking sucks. Anyway, Friday was a very long day but I will try to do my best to break down each appointment despite the fog of my head cold.

A Little Secret
I began the appointment for my pap smear by arriving 10 minutes late. I'm typically the type to get there 20 minutes early, but the recent onslaught of storms has massacred the morning commute in the bay area. Fortunately I think my tardiness only resulted in less time that I'd spend in a paper gown. When my doctor came in we chatted briefly, but before she got started on my examination she noted on my chart that I wasn't using any contraceptives. When I explained to her that I'd been trying to get pregnant for two and a half years and just wrapped up six failed dIUI's, she shook her head, and looked down at the floor as she began to tell me about the four IVF cycles she had completed several years ago. She explained that she was older when she started trying so she knew it wouldn't be easy. Her first IVF cycle resulted in a chemical pregnancy which required a D&C. Just two days after her D&C she had to go back to work and delivered four babies over the course of two days. She said she bawled after every single delivery that weekend. Her next IVF resulted in her son. The one after that was a BFN. And the one after that resulted in twins, thanks to donor eggs.

I was astonished that she was so willing share her journey with a patient, maybe she just took pity on a fallen comrade. Whatever her reason I was, and am grateful for her honesty. Anyway, the appointment ended with both of us in tears although not necessarily sad tears.

Dr. Do Little
The second appointment was with the OBGYN, and Brian joined me. I'm still not sure what to say about this guy. I left the appointment kind of shaking my head. His only saving grace is that he works somewhat closely with the honorable Dr. Zouves, and even referred to him as his "mentor". Basically he thinks my issues may be immunological, and wants to run a boatload of blood tests to prove it. Fortunately he took pity on us and our crappy insurance situation and offered to file the blood tests under "Infectious Diseases", instead of "Infertility" so that our insurance would cover it.

He never really even got in to what our plan of action would be, he just did a lot of babbling about Natural Killer Cells. Which I'm not blowing off. I just don't much about it. I was impressed when he said that since implementing the immunology practices, his miscarriage rate has gone down from 33% to 20%. I still don't know about this guy though ...

Dr. Deja Vu
Despite being 20 minutes late this doctor was pretty awesome. He went over all of our test results and explained what everything meant. He also did an u/s "off the books" since our appointment was being paid for out of pocket. We were grateful for that. He wanted to take a look at my lining and check my antra-follicle count. Just like my test results, and just like we heard before - "Everything looks great" and "There doesn't appear to be any issues"... He did however suggest that Brian go to see a urologist. If not for fertility sake, just to make sure there are no other issues. He also said this doctor could confirm/define any chromosomal issues. Which is a whole other post in and of itself.

He wrapped up the appointment by telling us our options: Injectable dIUI's with a 20% success rate at $2,500. Orrrrrrrr. IVF with Brian's sperm, with a 40% success rate at $15,000. And this is where it gets complicated.

SERIOUSLY?!
This is literally, the exact same situation we were in last January. We need to make the decision between a moderately affordable dIUI that we could do as soon as we're ready (emotionally). Or we wait for an undefinable amount of time,(possibly a year) while we save up for IVF, but we should be able to use Brian's sperm.

The main reasons we decided in dIUI before were because:

A. IVF would be very difficult on us financially (Still is)
B. We were concerned about genetic issues that could be passed on to our children. Brian may have Marfan Syndrome, (we're going to get that officially diagnosed this week) He also has two very close relatives that are mentally handicapped. *This is something we were fully aware of when we started TTC, and just decided we'd be happy to have any child we were blessed with. But when Brian's SA's came back abnormal, our concerns about what could be passed on became greater.
C.Because IVF would be so difficult financially, we were having a difficult time justifying the 40-50% success rate over the financial risk. And it would mean we'd have to wait that much longer to get this show on the road.

I'll be completely honest and say that I am pretty lost at this point. The thought of Brian being the biological father makes my heart sing. But I'm still having a hard time justifying the financial risk and the time lapse. What if we take the next year off to save for IVF, and it doesn't work? Then not only we will we be extremely heartbroken and another year into this mess, but we'll be out 15k and have nothing to show for it... Part of me feels like if we're going to gamble on 15k we should just put it towards adoption - which has an exorbitantly higher rate of us coming home with an actual child. But I just don't know...

May I just say once again, just how fucking much infertility sucks.

Because One Wasn't Enough

I got to see another negative pregnancy test this morning.

You see, AF still hasn't shown. I stopped my progesterone on Saturday; for the last two cycles it only took her a day and a half to show. And I've still been experiencing those mysterious cramps, only to a higher degree. My lower back cramps actually woke me up the night before. Because they were so persistent, and so intense, on top of the fact that I rarely ever have them AND my period was still MIA, gave me the tiniest glimmer of hope. What if I'm one of those weird phenomenons who don't get a positive test at 14dpiui, or what if the test was faulty??? I thought. When I should have known better that her absence was yet another cruel joke.

Last night during my brief spell of hope, I battered myself with the what ifs. I chastised myself for drinking caffeine, and alcohol before AF actually showed as proof that this cycle was a bust. Again. But alas it was all for nothing. AGAIN. I don't have to refer to Drgoogle to find out what happens when if you stop taking your progesterone in early pregnancy. I'll continue to wear a panty liner, and expect her appearance each time I head to the ladies room. Gosh if I'm lucky she'll show up on Friday.

MERRY CHRISTMAS Melissa!

Love,

Your empty uterus.

Out of My Hands

Raise your hand if you've been lapped by The Duggars more than once. You have GOT to be fucking kidding me.

Anyway, back to me and my bad attitude. Boo to round two!!! Third time better fucking be the charm, is all I'm sayin'. So contrary to the sad, sad picture I posted of Parker, I'm actually pretty pissed off. But the kind of pissed off that builds into sheer drive. Which isn't necessarily a bad thing I suppose, all of our laundry is done. Brian should be thrilled about that. But what do I do with this extra motivation? If motivation were enough to get me pregnant I'd be keeping pace with the Duggar's by now. The reality is I don't have any control of the outcome of my next IUI.

The moment I found out it didn't work I decided to create a new plan. I'm going to loose some weight! I proclaimed. I'll skip this cycle and shed what I can in the next six weeks! After I posted the results of my Big FAT Failure 2.0, I got a phone call from Teresa to see how I was doing. I told her I was frustrated, but that I had devised a plan. This is where she eloquently and ever-so-gently pointed out that, my "new plan" was actually my "new way of coping". I was trying to take control of something in this situation.

I had my first acupuncture appointment this morning since CD1. Ms. B looked at me with empathy and said, "Well you didn't expect to be one of those lucky bitches who gets it on the first try, did you?" I quickly reminded her that this was my second try and she succinctly blurted out "THIRD TIMES THE CHARM!" with a smile and patted the table. She'd better be right. Ms. B told me it couldn't hurt to loose a few pounds, but that my specific weight will not prevent me from getting pregnant. I don't need to skip a cycle to watch my diet, but nothing drastic. No crash diets, no death defying workout plans. I realize she is not my RE, but I still trust her opinion. So she plans to be a little more aggressive with this next cycle. I don't actually know how much more aggressive you can really be with acupuncture, but again... I trust her opinion. I'll begin a new vitamin and herbal suppliment regimen. She also doesn't think I should try a cycle with clomid, or injectables just yet. She says my body is doing the work, we're just waiting for the fireworks to happen.

Dr. RAWKS did tell us it would take up to six tries (gulp). I'm just so tired of waiting. I DON'T WANT TO WAIT ANYMORE. I've waited long enough! Haven't we all? I don't want to skip a cycle, and neither does Brian. We're going to move ahead this month. We won't be changing up the protocol much. My body is doing what it is supposed to. Now if only that fucking egg and sperm will do what it's supposed to!!!

On that note. Here is a picture that better represents Parker.

Our Monkey-dog in all of his cantankerous splendor.

Me, Me, Me

I came back to check out my last post. I usually reread them a few days later. There are always typo's that I missed, or sentence structures I end up changing. But this time I feel the need to explain a few things in the last post. Number one: I was having a bad day, childlessly speaking. Number two: There is almost no right way to tell an infertile couple that you're expecting. Maybe I shouldn't be generalizing, but what I'm trying to say is that you, the fertile, can't win. No matter where you tell me, or what you say, I am going to feel a loss. You know why? Because it's ALL ABOUT ME. I live in a far off distant land, where your pregnancy news makes me think about my empty spare bedroom. I don't like it here. I hate that my friend's joy only reminds me of what I'm missing. But I can't help myself. So when you tell me that you're pregnant, and I congratulate you with a smile. Please know that any sadness in my eyes has nothing to do with you. It's all about me.


P.S. There is an unruly double standard that also applies, I'm usually very excited for people dealing with infertility who finally become pregnant.

Undone

Have you ever missed someone you've never met? Or ached for something so much that its hard to breathe?
I'm down today. I should have seen it coming. I've been pretty even keel, since our first meeting with the RE. Calmly putting it all into some kind of perspective. Was I just fooling myself? How do you organize your feelings for something like this? I've calculated and plotted. But it seems as soon as some sort of conclusion is reached, it all comes crashing down behind us. And I feel lost again.

Clarity

Writing yesterdays post was easier than I thought it would be. It also felt better than I thought it would. I don't feel sad anymore. I feel free.

The dust is still settling on life we thought we would have created together, but amongst the ashes is another one. Together, of course. The agony I felt month after month when I realized that something I thought I felt and loved never actually existed, is beginning to fade. And the horizon looks clear, and wide open.

There are still so many questions running through my head. The "what ifs" that I can't escape, the "what nows" that I try to focus on. I think about the fact that we still have options, but I flinch when I realize the roller coaster of emotions that would come with it, and the odds that are stacked in its favor. I think about the fact that the lines in our families may stop with us. If my brother never has children, or if Brian's brother never has children. That's it. I think about how much this will weigh on our families, especially our parents, when they realize they may never have grandchildren, at least not by us. And the list goes on...

When will I stop thinking about it everyday?

Will I always have this kind of resolve?

Should we come right out and tell people, like we've just booked a trip to Mexico, or should we wait until it's a topic of conversation?

Will sending out Christmas cards with my dog's picture only remind people that we can't have children?

What will become of the friendships we have once more of our friends start having kids?

How will I feel I at Baby Showers and children's Birthday parties?

What in gods name will I write about now???

If you're pregnant, drop everything you're doing and throw it in my face please

I know it's because I'm hypersensitive to it right now but GOOD GOD other peoples pregnancy news is EVERYWHERE. In the last week I have purposefully avoided the regular sites that I go to because I needed a break from hearing about anything to do with reproduction. Then at lunch today I decided to give people.com a once over and the top story is Pete Wentz calling his newborn son "A Happy Accident". That's fantastic. I quickly closed the browser and figured I'd go to one website where I could find someone struggling like me, someone who like 19 days ago posted about getting her period, someone I didn't think would now be posting about morning sickness. The Infertility Diaries at Redbook.com. Evidently the period she posted about was implantation bleeding. I know that I should be happy for her, but today- I am not. I know my last post was pretty pathetic and sad. But I hope that this one exudes anger. I'm so angry and frustrated and exhausted from feeling my feelings and thinking about getting pregnant and more over, not being pregnant. I really want to scream. I just feel so jaded. I feel done. Like it may never happen for us and I'm okay with that it if means I can get my life back. My train of thought back. My emotions under control, or at the very least reasonably contained. FUCK.

A Long December

I can't wait for this year to be over. I know everyone complains about how time goes so quickly- "I can't believe it's almost Christmas", and so on.  But this has been a very long year for me. For us.  A long and disappointing year. Every month giving me a two week block of time where I swear I can feel the earth spinning that much slower.  

What is it about this month that presents the motion to reflect on what exactly you've made of your life in the last 48 weeks?  I wish I could forget it all. I know having gone through all of this made me that much stronger, I can at least see that. But the amount that I've grown will never fill the void that I feel. Like a flightless bird.  I feel broken. 

Your Vote Counts

I feel pretty exhausted today. Last night we stayed up watching the election coverage, I cried many tears of joy and this morning my eyes looked like marshmellows. I know it sounds silly but I cry over Saved By The Bell, so a new president would surely make me loose it. I slept well, didn't wake up once infact. But something about crying just takes it out of me. I actually still feel like crying but I think it's just the phyisical hang over from having hyperventalated the night before. So I'm exhausted.

I'm also coming to the sobering realization about beginning this first round of testing. I've been so eager to get this started that I didn't think about the fact that now we will have to be concerned about results. This leads to a repeat of the seesaw I've been on since we got closer to the dreaded one year anniversary of ttc. Do we see a doctor? Do we wait it out? Obviously you know our decision. But now I am trying to control my emotions, and speculation which is proving much more difficult than that one decision. Here are my choices:

A. Hope that I am already pregnant and the $150.00 doctor visit was for nothing. (I'll know this sunday)
B. Hope that I will get pregnant immediately after the HSG, provided that evertyhthing is okay on Brian's side.
C. Expect not great news from all our testing, but hope that it's nothing that can't be fixed with a reasonable amount of time and money.
D. Not think about it, just focus on not crying at work. =)

What say you internet?

A Lesson

I feel foolish. I look back and can hardly believe I had such a cavalier outlook on starting a family. I was excited and thought, this is it, I'm ready, here we go...thinking I would be pregnant within a few months.

Seven months later I am not pregnant and part of me wonders why I am so upset about not being pregnant yet. I cry and then blame it on PMS. I used to wonder why it was so consuming for some women. How is that all that they can think about?

But then one particularly low afternoon I had to dig deep as to why I was so deeply affected. I had to rationalize it. Pick it apart. I began by telling myself that I have only been trying for 7 months, and that many women have been trying for years... How dare I get upset after only a few months with no success. Then I started to think back to the day that I realized I was ready. I know exactly where I was and what I was doing. I also remember being surprised at what a primal feeling it was for me. The answer to the question of when you are going to have children comes to you the same way the other answers to profound decisions you make in your life comes. You just know. There are no more questions, there is no doubt. It was like a switch flipped. It was my gut that spoke to me, an instinct, something so deep I was a little shocked by my own undeniable certainty.

That is why I cried today.Because that side of me has taken over, and wants to complete a single task. Now that I have picked it apart and made a little sense of it, I still feel like crying. I still ache. My lesson for today: Answers are not always solutions.