Monday, January 25, 2010

Crossroads

I totally meant update sooner, but I spent the entire weekend in bed with a NASTY cold. What started as a slightly stuffy nose on Friday (I have allergies, so a stuffy nose is fairly common for me), turned into a full blown head cold by Saturday. It fucking sucks. Anyway, Friday was a very long day but I will try to do my best to break down each appointment despite the fog of my head cold.

A Little Secret
I began the appointment for my pap smear by arriving 10 minutes late. I'm typically the type to get there 20 minutes early, but the recent onslaught of storms has massacred the morning commute in the bay area. Fortunately I think my tardiness only resulted in less time that I'd spend in a paper gown. When my doctor came in we chatted briefly, but before she got started on my examination she noted on my chart that I wasn't using any contraceptives. When I explained to her that I'd been trying to get pregnant for two and a half years and just wrapped up six failed dIUI's, she shook her head, and looked down at the floor as she began to tell me about the four IVF cycles she had completed several years ago. She explained that she was older when she started trying so she knew it wouldn't be easy. Her first IVF cycle resulted in a chemical pregnancy which required a D&C. Just two days after her D&C she had to go back to work and delivered four babies over the course of two days. She said she bawled after every single delivery that weekend. Her next IVF resulted in her son. The one after that was a BFN. And the one after that resulted in twins, thanks to donor eggs.

I was astonished that she was so willing share her journey with a patient, maybe she just took pity on a fallen comrade. Whatever her reason I was, and am grateful for her honesty. Anyway, the appointment ended with both of us in tears although not necessarily sad tears.

Dr. Do Little
The second appointment was with the OBGYN, and Brian joined me. I'm still not sure what to say about this guy. I left the appointment kind of shaking my head. His only saving grace is that he works somewhat closely with the honorable Dr. Zouves, and even referred to him as his "mentor". Basically he thinks my issues may be immunological, and wants to run a boatload of blood tests to prove it. Fortunately he took pity on us and our crappy insurance situation and offered to file the blood tests under "Infectious Diseases", instead of "Infertility" so that our insurance would cover it.

He never really even got in to what our plan of action would be, he just did a lot of babbling about Natural Killer Cells. Which I'm not blowing off. I just don't much about it. I was impressed when he said that since implementing the immunology practices, his miscarriage rate has gone down from 33% to 20%. I still don't know about this guy though ...

Dr. Deja Vu
Despite being 20 minutes late this doctor was pretty awesome. He went over all of our test results and explained what everything meant. He also did an u/s "off the books" since our appointment was being paid for out of pocket. We were grateful for that. He wanted to take a look at my lining and check my antra-follicle count. Just like my test results, and just like we heard before - "Everything looks great" and "There doesn't appear to be any issues"... He did however suggest that Brian go to see a urologist. If not for fertility sake, just to make sure there are no other issues. He also said this doctor could confirm/define any chromosomal issues. Which is a whole other post in and of itself.

He wrapped up the appointment by telling us our options: Injectable dIUI's with a 20% success rate at $2,500. Orrrrrrrr. IVF with Brian's sperm, with a 40% success rate at $15,000. And this is where it gets complicated.

SERIOUSLY?!
This is literally, the exact same situation we were in last January. We need to make the decision between a moderately affordable dIUI that we could do as soon as we're ready (emotionally). Or we wait for an undefinable amount of time,(possibly a year) while we save up for IVF, but we should be able to use Brian's sperm.

The main reasons we decided in dIUI before were because:

A. IVF would be very difficult on us financially (Still is)
B. We were concerned about genetic issues that could be passed on to our children. Brian may have Marfan Syndrome, (we're going to get that officially diagnosed this week) He also has two very close relatives that are mentally handicapped. *This is something we were fully aware of when we started TTC, and just decided we'd be happy to have any child we were blessed with. But when Brian's SA's came back abnormal, our concerns about what could be passed on became greater.
C.Because IVF would be so difficult financially, we were having a difficult time justifying the 40-50% success rate over the financial risk. And it would mean we'd have to wait that much longer to get this show on the road.

I'll be completely honest and say that I am pretty lost at this point. The thought of Brian being the biological father makes my heart sing. But I'm still having a hard time justifying the financial risk and the time lapse. What if we take the next year off to save for IVF, and it doesn't work? Then not only we will we be extremely heartbroken and another year into this mess, but we'll be out 15k and have nothing to show for it... Part of me feels like if we're going to gamble on 15k we should just put it towards adoption - which has an exorbitantly higher rate of us coming home with an actual child. But I just don't know...

May I just say once again, just how fucking much infertility sucks.

23 comments:

Anonymous said...

IT TOTALLY SUCKS. We were at a similar crossroads - after 3.5 IVF's with Mr. M's sperm and 2 miscarriages later, we had the option of spending 30k plus on more IVFs at a better clinic with no guarantee that it would work - we were already doing ICSI - or moving on to DS. As you know, we chose DS, another pregnancy loss with the first IUI, BFN after the second IUI and here I am after the third on clomid.

It is a really tough decision - I have not regretted our decision, however, I do have some bittersweet moments about not continuing the IVFs...

Have you tried clomid yet? I think you were using something else - clomid is cheap and it may work????? Just brainstorming here...

Thinking of you and you know that I am pulling for you all the time.

Lisa - meinsideout - would not let me post under wordpress...

Meg. said...

I hope your sinuses are clearing as I type. =)

Ok, I have so much I want to say, but I'm going to say this first: Dr. Zouves offers a shared risk program where, if your cycle (fresh + transfer of all frozen embies) doesn't result in a viable pregnancy, you get a 90% refund!!! Seriously. The only catch? You can't utilize any insurance. The cost is kind of intense (probably upwards of $15,000), but it helps the freak-out factor a bit knowing that you'd get 90% of that back if you didn't fall pregnant.

AND Dr. Zouves is the king of immunological issues (as you learned from the OBGYN) AND he offers PGS (so you could screen embryos for Marfans) AND he's super, super, super kind (he also did my first u/s off the books). And he's in Foster City (holla!).

Anyways, I could go on, but I don't want to overwhelm you. =) If you want, I could bring my Dr. Z info with me on the 6th (prices, a DVD, etc).

I know you and Brian are super confused at this point and stressing about money (trust me, we are too), but I'm SO glad that all the docs you met with were respectful to you.

Can't wait to see you!

Rach said...

Yes, it does suck. After 8 months of trying we were given the diagnosis last week - Husband has ZERO sperm. Not looking good for us.

Missy said...

Yes, it sucks big time. I can see the frustration of what if IVF with Brian's sperm doesn't work. But try to think about the effects of making the opposite decision. If dIUI works this time, how would you feel long term of never having a baby with his sperm? Which "what if" do you dislike more? I see the added the expense of IVF not just as a gamble, but as insurance against your worst "what if." Not that IVF will necessarily work, but you won't spend your life wondering what would have happened if you tried. If the lost time and money worries you more than that what if, then go with dIUI.

R.J. said...

Oh man, I could have written this post about 6 mos ago. It's so hard to know what the "right" path is. There are so many factors and feelings to be inputted into such a decision, huh. There just isn't a simple answer for any of us.

I'm glad you're looking for more concrete answers from the docs though. They should hopefully help you with the decision process.

Hillary said...

Melissa, it seems so bizarre that after meeting at the new year, we are both in such very similar places of uncertainty and wondering if we will have a child. I know exactly how hard this place is to be, and am thinking of you and praying for you. I am sorry you are here :(

I am glad, however, that you meant with some great doctors that gave you some options to think about. Praying for you as you weigh all options!

One idea (feel free to ignore) - could you apply for a grant? I think Parenthood For Me is gearing up to give away their first grants.

(((hugs)))

Rambler said...

Yes it sucks. The loss of control, the uncertainty and the crossroads you are standing at.

I'm sorry you are still tackling the same questions a year later. If it helps, I know how that feels too. I'm not sure what I would do either, except eat a lot of chocolate and bite my nails a lot. :)

Jessica said...

Oh the frustration...I am so sorry girl. You already know that we are fighting a decision on what to do next. You are right. It really fucking sucks.

I hope the answer comes to both of us soon. Doesn't it suck that all of this revolves around money? It makes me sick to my stomach.

It's funny that mention your OB's story. The same exact thing happened to me a few years ago. My doctor opened up to me that he and his wife went through SEVENTEEN unsuccessful IUI's. They then moved onto IVF and it worked the first time. It's crazy how many people share our problems.

Enough of my rambling, haha! I will be praying that you two come to a decision soon. Follow your gut!

lastchanceivf said...

Amen sister on the sucking part! It does all suck, all the agonizing decisions, the gambling of money...some days I can scarcely believe how much we have spent (WASTED) and still sit empty handed.

I wish I had some words of wisdom but I really don't. I'm useless at this point. But know that I'm here and I know how dark this road is sometimes.

Jendeis said...

Joining you in calling infertility the height of suckdom. As Chandler would say to Infertility, "Hell is filled with people like you."

Wishing you strength through this process and that you come to a decision with peace.

Once Upon A Time said...

I am right there with you on the cold that started on Friday... blech. Not cool. I was waiting to hear about the appointments though! I do think it totally stinks that you are having a Groundhog's Day moment and facing the same big decision as last year. You know what we did when faced with a similar situation, so I'm not going to give you advice about what to do- you and Brian know youselves best. I know that whatever path you choose this time will be the right one. I will be right there to support you in whatever decision you make!

Brandy said...

Amen. It does suck!

www.brandysheaif.blogspot.com

Jane said...

I'm sorry that you seem to be right back where you started. What a difficult, difficult decision. And additionally it sucks because a lot of your decision making revolves around the money issue. Yuck. I hate money. But hopefully you guys will get some additional answers soon (to the immunological issues and the marfans, etc.) and that will help in your decision making. Good luck!

MelissaP05 said...

Hmm, that's a tough spot you're in again. It sounds like the doctor did throw out some good suggestions about testing, but does he think you may need some testing too? I know everything has checked out good with your U/S, when was the last time you did an HSG? I guess I would keep doing some testing as long as it was covered by your insurance or not so expensive, before I'd dive into more treatments, especially after as many IUIs as you did. Gosh, I hope things work out for you soon and y'all can figure out your next steps. Thinking about you and best wishes!

Jessica said...

Be proud of yourself that you keep trying. I hope that a path opens that feels comfortable to you (as much as possible.) Miss you. J

tge said...

I hope that in your gut you come to know the right path for you. If my heart sang to me I would be pretty put out to ignore it, I'm just saying.

Alice said...

I wish I could tell you the right path! I wish I could tell me the right path! The uncertainty is awful..just awful. I am going to email you soon (I promise), but I've actually heard some negative things about Dr. Z and his methods. That being said, there are a lot a fans. So, I guess that just leaves you as confused or more confused than where you started. Feel better and I hope you find a way to make a decision on what's next.

quadmom said...

Wow this is a really hard decision. I can definitely see leaning strongly towards IVF since it means Brian could also be genetically related to your baby. But I can understand how it's hard to take such a huge financial risk if you can't be guaranteed success. I am not sure what I would do in your shoes, but I hope and pray that with a lot of thought and discussion you guys can make a decision that brings you both peace and that you feel is right for you.

Lisa said...

I'm sorry you're facing this crossroads in your fertility treatment.

Just no way around it. It's hard. So, so hard.

I'm going to tell you what my Mind/Body instructor (this, BTW, was my 3rd instructor, I love mind/body) said and while I will not do it justice with the way she ultimately came to the point, here goes...

WHATEVER YOU DECIDE WILL BE THE BEST DECISION. PERIOD.

I am wishing you all kinds of peace to you and Brian in this difficult decision and, ultimately, I know you both will make the right decision for you.

Can't wait to see you and talk more~~~

'Murgdan' said...

What a decision. I'm so sorry you now have even more choices in front of you. Not because the choices are bad...they're just hard. And difficult.

The cost is so much higher with IVF, true...but so is the success rate. But the cost is SO hard to deal with.

I say take all the time you need to make this decision. I'm sorry you find yourself at another crossroad here.

Thinking of you.

Jessica White said...

Ughhh...it sucks! Hopefully the right decision makes it's self very obvious.

Clare said...

Completely and totally and horribly sucks! Oh sweetie.. I feel for you right now. How do you make a decision on this?? Do you want to consider continuing with the dIUIs after you've had some testing for immune issues? That sounds kinda promising and also quicker compared to your other options.... You must go with what you both feel is right at this moment... these decisions are so so difficult. Sending you big big hugs...

Jamie said...

I cried when I read your post. It was very touching to say how your regular ob opened up to you about her own life experiences. My ob in atl opened up to me when I told her about freaking out about ttc and not sure if I was ready and feeling guilty about it. (That was before I had any clue about what was about to unfold...oh, when I thought it would all be so easy...) She was awesome and I miss having her as my doctor. Sounds like she is great and I hope that you guys get to that next step so that you can use her services for something other that the yearly check-up.

Big hugs and I am sorry you feel like you are starting all over after such a difficult year. Take it one day at a time and follow your heart.