Thursday, October 21, 2010

How to be Misleading in an ICLW Description

You can start by abruptly ending your break (of 10 months) after attending a seminar given by the man who will become your new RE. After a phone consult reveals CD3 will be in just four days, you dive ankles first back into the stirrups. (for those of you keeping track that was six days after the seminar - four days after the phone consult) Two phlebotomists, twenty-four vials of blood and a baseline ultrasound later, you find yourself itching for test results whilst simultaneously remembering what it's like to be here yet again and suddenly becoming terrified that the test results could come back with BAD news... And they did... Not only was I diagnosed with OPCOS, at first over the phone then confirmed during my baseline u/s (which my first RE never caught), but my blood tests later showed that I tested positive for two A1298C mutations, indicating MTHFR. Which my first RE never tested for because he doesn't BELIEVE in Immunological Disorders.

Hi.

Still with me?

Good.

Here's some history!

My husband (35) and I (31) started TTC in the summer of 2007. I genuinely believed that we would get pregnant on the first try. Ha. Fourteen months later, we moved on to testing through my OBGYN's office which revealed a severe male factor. She promptly pointed us towards the RE who I now hate told us IVF w/ICSI or Donor Sperm would be our only hope. After MUCH deliberation we chose Donor over IVF, partially because it was the most financially attainable option and because we were concerned about the implications of the severity of his diagnosis might mean for our future children.

Fast Forward to December 2009 when we completed our SIXTH and final DIUI. All of them left us with straight up BFN's and a fair amount of debt. Our RE at the time and the second opinion we got a month later were dumbfounded and couldn't explain why none of the IUI's worked because my charts looked so great. Umm yeah, neither of those doctors caught the OPCOS which is clearly evident in an u/s and with knowledge of the fact that my cycle is 30 days. And interestingly enough, neither of them test for immunological factors... But at least I have an answer now as to why none of the dIUI's worked.. Not that it's any consolation.

That brings us to January of this year, I'm not going to lie- I was a complete basket case. We decided to take the rest of the year off to focus on our marriage and restoring my mental health. By March we had decided to plan for IVF in 2011 - with my husbands sperm.

Even though we had been planning for several months to attend the seminar on September 30th and follow up with a phone consult shortly thereafter. I really had no idea how quickly this would catapult us back in to the TTC/ART world. When I signed up for this month's ICLW, I thought it would be a nice way to tip toe back into the supportive waters that is the ALI community. And while I'm 1,000 percent ready to move forward, it's hard not to think about how comfortable and effortless things were just three weeks ago...

Thanks for stopping by, I look forward to reading about all of you.

22 comments:

Damita said...

I hope that the IVF works for you hun and I am so sorry about all the issues you have been having *hugs*

Laura said...

I am so sorry that your previous doctors didn't test for all of the possibilities, makes you want to ask for a refund for all the IUI's hunh? I hope you have better luck with the new doctor!
ICLW # 107

rebecca said...

What an emotional roller coaster you have been on, hoping that this next IVF cycle brings you a healthy pregnancy. My husband & I also struggled with MFI. Hoping you feel embraced by this amazing ALI community once again as you begin this next step in your journey.
~ICLW #8

Do I Have to Be a D.I.N.K.? said...

How exciting and welcome back! I will also be doing IVF in Jan!

daega99 said...

Oh wow. I hope that this time around, with all of the information, you will be successful!

ICLW
http://daega99-arewethereyet.blogspot.com/

Anonymous said...

I hope that the new RE makes all the difference in the world.

Sarah said...

Wow. Well, at least now you know. That's the good news, right? You can't fight it if you don't know what you are facing.

Screw that old RE.

ICLW #8

Kerri said...

I'm sure this is destined to get lost in a sea of ICLW comments, but I wanted to stop by and say hey anyway. And I'm glad you're back-- both in the regular blogging world and the TTC world. And also? I can't believe your RE doesn't believe in immunological disorders. WTF is up with that?! That doesn't seem like something you can choose not to believe in to me. So glad you're with a new RE now. And even though all of this new diagnostic information is, I'm sure, overwhelming, I'm glad that at least you know what you're dealing with now. I think that'll make a world of difference in your plan of action.

The Wifey said...

My RE's never tested for immunological things either... oooh now you got me wondering....

Glad you are with a new RE now too and finally have a diagnosis of some sort.

Hoping next cycle you get a sticky :-)

Unknown said...

Good luck with the new plan! I hope it brings you your miracle!!

Triumph in Learning said...

Wow! So glad to here you now have a new RE, and that you know what you are dealing with!(not that anyone wants to hear there's another problem in anyway) Although it can help lead you to your little miracle since you now know what your dealing with:)

Hopeing your up coming IVF brings you the baby you've been longing for!

Hugs,
Hannah

*ICLW*

Anonymous said...

I am really glad your new doc caught the pcos and the mrthr. I hope that with the new changes to your cycle you will have a great cycle with a positive outcome. Good luck!

Rach said...

Happy ICLW! Glad you have a new RE and getting some additional tests and perspective!

Krissi said...

Wow! I'm so glad you got some news that will help you in the right direction. It looks like this break brought you to the right place and right time! I just added your link! And do wish you all the best for this cycle. (ICLW #72 & 106)

Courtney said...

Oh girl what a journey you have been on, been through a crapload myself. I wish you ALL the best. 2011 just has to be a better year for SO many of us!

*hugs*

ICLW #163

Wanna Bee said...

and that RE doesn't believe in Santa Claus either!

Anonymous said...

wow, so sorry you've been through so much! i hope now that you have some answers, that your BFP is right around the corner.

Grace said...

phew! that is a LOT to have gone through! praying and hoping IVF brings you a little one...and hoping your months leading up to it are filled with lots of fun and R & R!
thanks for stopping by!

Lisa said...

Stopping by and thinking boutcha, sista...XO

Lisa said...

Hi Melissa,
It sounds like you are feeling really let down by your doctors and rightly so. This is a tragedy, because you will look back on the last 3 years of trying to conceive as a waste of time, when you and your husband were clearly putting all of your resources toward this effort.

It's great that you now have a specialist in whom you trust. Go into this IVF cycle with as much positivity and faith as you can muster, not holding the previous disappointments against your new medical team. The news of your diagnosis may feel bad, however, knowledge is power; in this case, the power to make informed decisions and move forward. Best of luck to you.

Lisa (Your Great Life - ICLW #63)

heartincharge said...

I am so sorry about that bad news but super glad that you found your new RE and you acted quickly. The good news is that IVF should help overcome the OPCOS, right?
Welcome back to active ART and I hope you are not here long! I hope this IVF works.

Jem said...

Hi! Just catching up on your blog. Wow, what a huge truckful of crap to be loaded on you. At least you have an explanation of WHY you didn't get pregnant and are now in the capable hands of the doctor, our doctor, who can help.

I will be starting my cycle with him early November. I'm still getting all my testing done (heading off to the vampire cave after work).

I wish you all the best for your new cycle. Do you know what protocol he's putting you on?